Keep praying for Gus ππ»
Over the last week, Gus has done well in terms of post-operative recovery. He had several days of discomfort and delirium, but he seems to be moving past that. He's taking a bottle again. He's alert when awake. Unfortunately, we've had two discouraging developments re: his heart & kidneys.
Despite what were originally promising results, it appears the tricuspid regurgitation (TR) we sought to address in surgery last week has gone from mild back to severe - as it was prior to surgery. The cause of this is unknown. Gus will have another TEE (transesophageal echocardiogram) tomorrow to get a better look at the heart's function and anatomy. Hopefully we will learn why this regress has occurred. It could be any number of issues. Perhaps the valve has gotten worse. It could be a fluid balance issue. Maybe something done during the surgery has since failed - we simply don't know. What we do know is that valve repair surgeries are very complex and don't always produce the desired results...and Gus rarely does things the easy way.
As for the other development: the most recent renal scan has shown further deterioration of kidney function. While the kidneys are still perfusing, they are not perfusing as effectively as they were a month ago, with little to no output. This suggests the prognosis for his kidneys is poor. Even if they recover, the likelihood of CKD and eventual renal failure is increasingly likely.
It's hard to hear news like this 177 days into our journey with Gus. We're tired and worn out. We're thankful for our friends and family who continue to support us, as well as for all those who are following our story and offering their prayers and encouragement. We continue to confess that God is good. Even in the midst of difficulty, there is beauty. There are precious, happy moments that, apart from the amazing care Gus has received, we wouldn't have had with him. We pray, and we hope, and we love. God's grace will prove sufficient.
We'll have more updates once we know more.
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